News and Updates

Keep up to date with the latest news at Parkinson’s Care and Support UK as well as developments from the world of Parkinson’s.

Siblings aged 9 and 12 cycle 200 miles to help people affected by Parkinson’s

Meet Eli and Kelize, age 9 and 12. The siblings from Surrey, have become the youngest children in the UK to cycle 200 miles for the Cycle for Parkinson’s challenge!

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Our latest interview with Ray Dorsey, MD

It is the most talked about book this year on Parkinson’s Disease! A Prescription for Action, Ending Parkinson’s by Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD and Bastiaan R. Bloem MD PhD is on sale now. Elizabeth Gordon, Chief Executive of Parkinson’s Care and Support UK, speaks in depth to Ray Dorsey about the prevention of Parkinson’s and how the UK is contributing to the Parkinson’s pandemic.

Read full interview
Ending Parkinson's Disease

Online Exercise

Due to the coronavirus crisis we have had to cancel all of our venue- based exercise classes across the UK. This was a difficult decision to make for an organisation that has exercise at the core of its activities. People with Parkinson’s are our priority and so we did not hesitate to bring to our exercise classes online. We have a variety of online exercise classes with multiple ways in which you can access and get involved.

Parkinson’s Exercise Hub

Join our Parkinson’s Exercise Hub via Facebook to access our pre-recorded Parkinson’s Specialist Exercise classes by our instructors who usually run our classes across the UK. The classes are approximately 25-30 minutes long and include a wide range of activities including: Move and Shout, Chair-Based Yoga, Qigong, Tai Chi and Multimodal.

Like our Facebook page:

https://www.facebook.com/ParkinsonsCSUK

Join the Parkinson’s Exercise Hub:

Parkinson’s Facebook Exercise Hub

LIVE online Exercise Class

We are proud to be the first UK Parkinson’s charity to offer FREE LIVE online Exercise Classes for people with Parkinson’s. Don’t let the lockdown stop you from slowing down your Parkinson’s progression. Register to take part in our classes from the comfort of your home today!

BEAT BOX LIVE via ZOOM

Join us for Beat Box! Our new weekly online exercise class LIVE on ZOOM, every Thursday at 4pm.

Parkinson’s Care and Support UK are pleased to bring to you weekly Beat Box exercise classes where you practice non-contact boxing techniques to music! These are lively, High Intensity classes. Participants work on developing footwork for balance and agility without any risk of head trauma! Beat Boxing is associated with improvement in eye-hand Coordination and better balance. For people with Parkinson’s, balance is key.

Beat Boxing is a great aerobic exercise. Aerobic exercise gets your heart pumping and helps lower the risk of high blood pressure, heart disease, stroke and diabetes. High intensity exercise like Beat Boxing helps your brain to increase the production of endorphins and dopamine- just what you need if you have Parkinson’s! It can strengthen bones and muscles, burn more calories and lift mood.

Come and join Parkinson’s Care and Support UK at BEAT BOX LIVE on ZOOM!

When: Every Thursday starting 16th April 2020

Time: 4.00PM GMT London

How: You must register in advance for this class:

https://zoom.us/meeting/register/tJAoceGqqDwoE9ZXH_oKLOHfVW7tA6uDj7Px

MINDFULNESS YOGA via ZOOM

Join us every Tuesday at 4pm for LIVE Mindfulness Yoga by our Parkinson’s Specialist Yoga Instructor, Charlotte Kahn.

With the current coronavirus pandemic, stress and anxiety levels are extremely high, especially for people with Parkinson’s. Around 40% of people with Parkinson’s will experience anxiety at some point during their illness and so it is super important that health and wellbeing is prioritised during this difficult time.

A clinical trial in Hong Kong has shown that Mindfulness Yoga can be beneficial in reducing anxiety amongst people with Parkinson’s. Mindfulness yoga mixes yoga with meditation and controlled breathing. It is different to many traditional yoga practices in that there is less of a focus on the exact posture achieved and more focus on body/mind awareness rather than the ‘perfect’ pose.

When: Every Tuesday from 21 April,04:00 PM (GMT) London

How: You must register in advance for this class:

https://zoom.us/meeting/register/tJUodeChqj4jHtG2A7T-oNTQbVSSahFdWbfs

After registering, you will receive a confirmation email containing information about joining the meeting.

For further information on any of our classes,please email exercise@parkinsonscare.org.uk

Beat Box Classes
Mindfulness Yoga
Therapies

World Parkinson’s Day- LIVE Mindfulness Yoga via ZOOM!

Parkinson’s Care and Support UK are pleased to bring LIVE Mindfulness Yoga to the Parkinson’s community by our Parkinson’s Specialise Yoga Instructor, Charlotte Khan.

With the current coronavirus pandemic, stress and anxiety levels are extremely high, especially for people with Parkinson’s. Around 40% of people with Parkinson’s will experience anxiety at some point during their illness and so it is super important that health and wellbeing is prioritised during this difficult time.

A clinical trial in Hong Kong has shown that Mindfulness Yoga can be beneficial in reducing anxiety amongst people with Parkinson’s. Mindfulness yoga mixes yoga with meditation and controlled breathing. It is different to many traditional yoga practices in that there is less of a focus on the exact posture achieved and more focus on body/mind awareness rather than the ‘perfect’ pose.

We would like to invite you to take part in our Mindfulness Yoga session online via ZOOM on World Parkinson’s Day.

When:

Apr 11, 2020 04:00 PM (GMT) London

How:

You are register in advance for this class:

https://zoom.us/meeting/register/tJ0ldOmsqDsuei6zVEnJ3rf_PaH6aBmetQ

After registering, you will receive a confirmation email containing information about joining the meeting.

For further information please email exercise@parkinsonscare.org.uk

Our Exercise Classes- Parkinson’s Exercise Hub

In following government guidelines on social distancing, we have stopped all of our face to face exercise classes and have replaced these with online classes.

To access our exercise services, please like our Facebook page at www.facebook.com/ParkinsonsCSUK where you can join our Parkinson’s Exercise Hub and access our class videos including Tai Chi, Qigong, Chair-based Yoga, Multimodal and Move and Shout.

Why don’t you take this opportunity to join our 2.5 Challenge LIVE on ZOOM at 11.30 am daily between 5th-9th of April as part of Parkinson’s Awareness Week. You will be able to take part in 30 minutes of high intensity exercise over 5 days with one of our instructors.

You will need to register to participate at: https://zoom.us/…/regist…/vpErcuiupzkjl4Xs-Fb0WdIdMHtj2sJ0Eg

Exercise Classes
The Jubilee River Swim 2020

Registration is now open for The Jubilee River Swim 2020!

We are excited to announce that Parkinson’s Care and Support UK, have places to offer for The Jubilee River Swim 2020! The Jubilee River Swim has become one of the countries favourite swims.

The man made flood relief channel between Boulters Lock nr Maidenhead and Pococks Lane in Eton is free from craft and is a convenient length at 10km! There are three weirs along the rivers length that break up the swim nicely, and you’ll find feed stations here.

Please note – this is a solo swim event, there is no relay option.

This is a great swim experience where swimmers take on the challenge of this beautiful 10km river and entrants can be as young as 13 years old!
This is one not to miss. Entries closed many months before the day so get your entry in early!

About this event

Date: Sunday June 07, 2020
Venue: Royal Windsor Racecourse
Maidenhead Road Windsor, United Kingdom SL4 5JJ
Parking: Yes
Registration Fee: £85
Minimum Sponsorship: £400

Register your interest now!

Enquire Here

More Evidence that Parkinson’s Originates in the Gut -August 2019

Researchers at Johns Hopkins Medicine conducted studies in mice to investigate whether the toxic misfolded alpha-synuclein protein, which is a hallmark of Parkinson’s, could travel along the vagus nerve, which runs like an electrical cable between the stomach and small intestine into the base of the brain.

This study was prompted by previous research by German neuroanatomist, Heiko Braak, that showed people with Parkinson’s had a build-up of the misfolded alpha-synuclein in parts of the central nervous system that control the gut. Evidence from this latest study showed that alpha-synuclein began building where the vagus nerve connected to the gut and continued to spread through all parts of the brain.

It also demonstrated that blocking the transmission route could be key to preventing the physical and cognitive manifestations of Parkinson’s.

“These findings provide further proof of the gut’s role in Parkinson’s disease, and gives us a model to study the disease’s progression from the start… This is an exciting discovery for the field and presents a target for early intervention in the disease,” Says Professor Ted Dawson, M.D. Ph.D, Director of the Johns Hopkins Institute for Cell Engineering, Professor of Neurology at the Johns Hopkins University School of Medicine and a member of CPT’s Linked Clinical Trials committee

The Gut-Brain Connection
Neuron

The Importance of Microglia in the Parkinson’s brain- August 2019

Microglia are a crucial population of helper cells whose primary function is to act as resident immune cells within the brain. They function like a ‘special force’, linked to the body’s immune system. They deal with injury/infection in the brain and communicate with the immune system about how best to cope with a developing condition. When microglia sense trouble in the brain, they will start to evaluate whether the affected cells need to be killed off or nurtured back to health.

Researchers at the Van Andel Institute in Grand Rapids (Michigan, USA) recently published a report demonstrating that microglia are significantly involved in the cell-to-cell transfer of the protein alpha-synuclein. This Parkinson’s-associated protein is believed to pass from one cell to another, and during this passage the alpha-synuclein begin to clump or aggregate within the cells. This process is how researchers believe the progressive nature of Parkinson’s is manifesting itself within the brain.

The Van Andel Institute researchers reported that the removal of microglia from the brain resulted in greater aggregation of alpha-synuclein, as did the hyperactivation of the microglia when a chemical used to induce inflammation was introduced. Their results suggest that under normal resting or ‘non-inflammatory’ conditions, microglia play an important role in modulating the transfer of alpha-synuclein in models of Parkinson’s.

Regulating microglia and neuroinflammation could represent a future avenue for limiting the progression of Parkinson’s – by reducing the spread of alpha-synuclein in the brain.