Many people find being diagnosed an extremely stressful event, being unsure what exactly it means, what impact it is going to have on their daily lives and what the future might hold.
You may have spent a long-time going back and forth to the doctors, seeking treatment for symptoms which, at first sight, appeared to be an arm or shoulder injury. You might have even been misdiagnosed for an extended period of time or dismissed completely as it being “all in your head”. Eventually it would have been suggested that you see a neurologist where you might possibly have had a DAT Scan. Following another long period of waiting…voila! A letter through the door confirming a diagnosis that you never expected or know very little about.
“It is very likely that you have Early Onset Parkinson’s Disease. Exercise lots, eat well, don’t read up things on the internet and come back in six months! Sound familiar? While everyone’s experience of being told they have Young Onset Parkinson’s is unique to them, this experience is all too common for many people. On diagnosis, there is a distinct lack of information and support, and it is often left to the individual and families to research what is available, which can be worrying and confusing.